A Day In The Life of a Boy Who Wants To Go Home

I’m not even sure we could pack more in a day.

One of the therapists I had today was my therapist PT when I was 2 or 3! How’s that for neat!

PT / OTI had two OT/PT sessions today. I fell asleep after the first one in the morning where they had me build a train (it wore me out in 30 minutes) and missed my speech session. My speech therapist quickly changed her appointment time to before OT/PT. She’s smart, AND she had me build a GEO Trax train track… one of my favorite sets. In my 2nd session of OT/PT, I found myself walking out of the room and down the hall… almost to my room. My vision is really bad so I couldn’t really see and my balance is still wacky so I was a little (okay, more than a little) unstable. But I made it.

Later in the day, Mom and I walked behind the wheelchair. I walked all the way out of my floor, to the elevator, and through the main part of the hospital. Sometimes I even didn’t hold onto the wheelchair. I really, really want to be independent!

I visited with our family friends (Miss Melissa and Mr. Chris and Baby L), my Nana and Poppy, O and B, and one of my teacher’s Miss A. Having so many people in my room at once really wears me out. It’s too much to take in, but I did it because I love them all so… plus Miss A brought me McDonald’s… YUM!

The worst part of the day was waiting for one of the doctors to removed that tube from my head. I waited 6 hours… SIX hours to get it out.  I even had to get this numbing cream on my head twice!

And getting it out wasn’t painful, but the single stitch WAS! Even though I had two numbing creams on my head and had taken a heavy pain killer, it hurt so much I cried, and cried (actually screamed) and told Mom that I wanted to go home. But it was worth it, because I got to watch a Scooby Doo episode for doing such a good job and was finally able to wear this:

BatmanI really want to go home, so I’m going to continue to work hard in therapy. Everyone is guessing 1-2 weeks max for me to get home. I’m moving fast!

8 Responses to A Day In The Life of a Boy Who Wants To Go Home

  1. Kristen says:

    Jackson, you are incredible! I can;t tell you how much I love the photo of you and your brother and sister. You can tell that you guys love each other very much.
    You’re doing great buddy, and I’m so amazed at the miracle that you are!

  2. Courtney says:

    You are such an inspiration Jacskon!!! I am so happy to hear about ur progress. U keep up the good work! Hugs to u and ur family <3

  3. Bobbie Kollin says:

    Hi Jackson, you don’t know me but I knew your Mommy when she was my daughter Kate’s friend in high school. I’ve been reading about you, and just wanted to say that I’m so happy you are doing so well recovering from your surgery. Keep up the good work. You are a real trooper. xxx

  4. Pam P-M says:

    Jackson you amaze me. I LOVE that picture of you with O and B. They love you soooo much. And I LOVE the picture of you in your mask. That smile says it all. 🙂

  5. Emily Middleton says:


    Continue working hard….we love reading about your progress! You continue to be in our thoughts and hope you know how wonderful we think you are. Much love to you:)

  6. Pam brito says:

    my prayers for your family are that you will continue to progress as quickly as you have so you can go home. so many pulling and praying for you Jackson and your whole family as well.

  7. Officer Bob Wilson says:

    Jackson You are the best I can’t wait to see you so I can give you a big hug.

  8. Lisa Jenkins says:

    Jackson, you are completely amazing and brave. Definately an inspiration to kids & grown-ups alike.
    Keep it up. You’ll be home bewfore you know it.

    I love your mask!!!

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