I fell out of bed last night. That was new.
The day before I woke my Mom by crawling in her bed and playing with her face – that’s the way parents like to wake, right? My fingers were on fire, which did the trick; I like being subtle like that. My fever was 102.5. She definitely woke up!
Mom got me ice chips, Tylenol, a thermometer and cool washcloth, she checked my head. No oozing. No redness. Nothing other than her recall that I’ve been cold the last couple of days and that I started sneezing yesterday. Maybe just a cold?

Mom has brilliant theories…or so she says. This one has to do with the timing of my usual IVIG infusions. I usually get them every 4 weeks, and my immune system seems to go down every 4 weeks, which is part of the reason why she and and Dad requested I move from every 6 weeks to ever 4 weeks for infusions. Within the four week mark, I start little ‘sick’ symptoms until my infusion kicks in…this is the 4 week mark.
Her theories are mostly right on, though sometimes she gets a little wild with them. If she was writing this, she’d say she was right purely from common sense and a calendar. Me… Hey, I got in their bed again. Whatever it takes, right?!?
Anyway, they got my fever down. I was lethargic for most of the day, only leaving for chasing trains with Dad. Then, returning for my usual afternoon nap. Can you see me?
Today (with barely a fever), they forced me out by wheeling me around in my jogger. I think it’s safe to say I don’t like being outside these days. The sun is too bright. Not to mention it’s seriously HOT outside. Plus, Scooby-Doo, my trains, the iPad with YouTube, and the air conditioning are inside!
…and then there’s the matter of finding a comfy place to sleep…






