I Won Against Epilepsy – No More EEGs

Mom and MeJuly 23, 2010 this photo was taken… at least that’s what the computer says. Look at how little I was. I was 7 when this picture was taken. I think this was my 2nd or 3rd 24 hour EEG at The Children’s Hospital. We had no idea how many more times we would be doing this.

After 5 years of lightning running through my brain, doctors finally heard my parents… I don’t know why it took so long, I heard Mom and Dad perfectly clear. I wasn’t sleeping for strings of days and nights; I was beyond exhausted, sometimes no one could even understand me and trying to keep myself calm or trying to learn anything was impossible. It made no sense that doctors blamed my cerebral palsy or my autism. I’m glad Mom and Dad kept fighting.

So, in April 2009, I was diagnosed with LKS / ESES.

In 2010 that photo (above) was taken.

7-1-12 3 days Post Hemispherectomy On June 29, 2012, I had brain surgery to stop the part of my brain that was doing me no good. This is a photo of me then. –>

Later in 2012 (October 26th) my late great grandfather’s birthday, I was declared seizure free, but on anti-seizure medications. Next they had to take those away and see if the lightning stayed away.

As soon as 2013 started, Mom and Dad started taking me off of my meds.

Then today, March 5, 2013, Dr. K came in with a big smile and told Mom that I’m officially seizure free. I will have no more EEGs. I will only need an office visit to see my docs 9 months from now. My ESES is gone!

While my brain functions slower than it should because of all that lightning, I won’t get worse. I won’t get faster, but I won’t get slower. My right side doesn’t look like it will give me problems. My head is fixed, and now I’m going to work on doing things as best I can and trying to help make the best future for me as I can.

3-5-13 Mom and Me 2013

I plan on living each day with a smile. I have no problems finding something funny every day. I’m going to laugh. I’m going to explore because I love adventures. I’m going to enjoy the struggles that makes me stronger and better in the long run… because the struggles I have today are very different than what I had last year. I can live with that.

I will learn something new every week or every day and I hope you’ll still let me share them with you too.

And also, thank you!

17 Responses to I Won Against Epilepsy – No More EEGs

  1. Wonderful news. Congratulations!

  2. Leah Kelley says:

    Yay!! Go Jackson, GO!!!

  3. Susan Noble says:

    YAY!!! Way to go JACKSON I am soooo happy for you, Mom,Dad your family so proud of you. Jackson you are a BRAVE WARRIOR and you fought this with such courage, grace and dignity.

    I pray that you remain seizure free and I know in time and with God’s Grace he will continue to lead you to GREATNESS! We love you and will pray every day for you <3

  4. Y'vonne says:

    I’m weepy and adore you guys….xoxoxo So happy for the great progress. WTG all of you for all of you.

  5. I am SO thrilled to hear this, Jackson!

  6. Jay Oyer says:

    Congratulations Jackson! You are one tough kid with a bright future. I love to hear that your doctors were able to help! Great job fighting the battle Kiddo!

  7. BrendaWitwer says:

    What a wonderful story about a little boy and the love and support of his family, his friends and his doctors. bw

  8. Heather Tyrrell says:

    This is really terrific!

  9. Carla Timms says:

    Jackson, God is good. You are so blessed to have the parents and siblings you do who are there for you always. I am so glad to hear your new news and look forward to seeing you at school when I am there and help you keep learning every day. Bless you and your wonderful family.

  10. Rajean says:

    Jackson, this proves it is good to never give up the fight! Such terrific news and I love the happy smiles in the photo of you and your mama!

  11. ron solomon says:

    Great News!

  12. Flo Lattery says:

    Jackson – You are a Champion!!
    Congratulations on beating epilepsy.
    You are doing amazingly well and I wish you continued success in being healthy and strong, and all that you do.

    Flo

  13. Aunt Martha says:

    I’m so happy for you. I’ve been praying for you daily for things to get better for you.

    God bless you amd your mom, dad, Olivia and Jackson.

  14. Carla Mazique says:

    So thankful to God! So happy for Jackson and the entire family!

  15. Jane says:

    what a wonderful story

  16. Britt D says:

    So happy for you Jackson and your fam!

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