This Year, Halloween is Different

This Year, Halloween is Different

Halloween is coming!  It’s one of my favorite times of the year.  I get to wear costumes and pretend to be other people / creatures and I love to do that all the time anyway so this time is perfect for me. Every year I have hardest time figuring out exactly who I want toContinue Reading

From Summer to School

From Summer to School

By now you’re probably been wondering what I’ve been doing all summer. Well, even with as busy as I was last summer, I was even busier this summer (if you can believe that). I haven’t even had a chance to be near Mom’s computer too much so I couldn’t tell you. But, school’s starting andContinue Reading

Cancellation of the Bash!

Cancellation of the Bash!

We have been fortunate to have some who have ensured our family’s survival and success in our journey. One group of such people have a family emergency. We can not fathom going forward with a celebration without them. We know and appreciate all that everyone has done for us, and we are hopeful that youContinue Reading

My 1 Year Celebration Bash!

My 1 Year Celebration Bash!

Did you know, on June 29, 2013, it was officially 1 year since my surgery!?!?  One year…. we finally found a good time and are celebrating it, and I’d like to invite you all to share with me.  So here it is, your invitation.  I hope to see you there!

Warm Water Therapy Begins – video

Warm Water Therapy Begins – video

I’m calling Warm Water Therapy an adventure. Why? Because I tried this before through our rec center. Mom, dad and I were not happy. So we stopped. Then the surgery happened…and well…let’s just say I wasn’t ready to follow any directions until now. I’m going to a brand new place with Olivia and Braddock. TheyContinue Reading

My Summer Adventures Start with a Hair Cut

My Summer Adventures Start with a Hair Cut

The look of the Mohawk isn’t as important as what’ behind the Mowhawk. Since the surgery, and with a lot of continued help from everyone around me, I am continuing to find my voice. I recently used my voice to say something along the lines of, “I want long hair.” Instead of the usual superContinue Reading

It’s Time for Summer Adventures & An Annual Celebration

It’s Time for Summer Adventures & An Annual Celebration

I’ve changed a lot. Everyone says so. I’m still me, but I’m… clearer, deeper, funnier (at least I think so), and have more interests. I’m willing to do things like play with chalk (at least for a little bit). Play simple-to-understand games, take turns and follow directions. I interact more with my friends, my parentsContinue Reading


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