I’ve done a good job today. The leads for the EEG went on easily since I’m getting to know all the techs here, and they all know what makes this easiest for me. It was also time for me to get my IVIG infusion, so we are doing it while I’m here. But, it did… Continue Reading
Tomorrow is My EEG
It’s harder to write these letters lately… the letters to let you know what’s happening in my journey. Many days are very similar to each other with nothing exciting going on. Some days are good for me, some are not. Same with the nights. And the weeks. But this last week it’s been harder for… Continue Reading
Just Another Day….
Every time I turn around I feel like I’m going to therapy again. The good thing is I’m going with it. It’s a new schedule and it’s not the same every day which is a little confusing and frustrating for me, but I’m trying. I think it’s that and my repeated phrases that I can’t… Continue Reading
Vision Therapy… My Eyes Make Me Sick
The question of how I’m doing… I guess it’s hard for Mom and Dad to answer sometimes. I am not as angry as before. I have conversations. Well… I have a lot of great changes. But, sometimes I go for days in a row of not sleeping well at night, which makes us worry. It’s… Continue Reading
Scooby Doo Makes Me Perseverate
I just finished another round of IVIG infusions. Everything went well; no infiltration this time. Last time, my vein broke open and all the medicine went into my arm. My arm swelled so much, and was super hard, and it took 4 days for it to go down. This is my arm when that happened….… Continue Reading
More Stuff
I keep wanting to write to everyone. We’ve been so busy with doctors and offices and people having me do things, that this is the first time I could write to you all. Hi! So, mostly, I’m good. I’m still in school full time. My school has made some changes so I can be better… Continue Reading
Navy Seal Team 8, Thank You
I would guess people wonder why our family shares what we do. Mom and Dad say it’s because I “make an impression” on everyone I meet, that people can learn while we learn. They hope that we can help someone else. I like helping people, so it seems like a good idea. Today, we stopped… Continue Reading
