It’s Time for Summer Adventures & An Annual Celebration

It’s Time for Summer Adventures & An Annual Celebration

I’ve changed a lot. Everyone says so. I’m still me, but I’m… clearer, deeper, funnier (at least I think so), and have more interests. I’m willing to do things like play with chalk (at least for a little bit). Play simple-to-understand games, take turns and follow directions. I interact more with my friends, my parentsContinue Reading

I Won Against Epilepsy – No More EEGs

I Won Against Epilepsy – No More EEGs

July 23, 2010 this photo was taken… at least that’s what the computer says. Look at how little I was. I was 7 when this picture was taken. I think this was my 2nd or 3rd 24 hour EEG at The Children’s Hospital. We had no idea how many more times we would be doingContinue Reading

Today’s My Birthday!

Today’s My Birthday!

So much has changed for me since my surgery. A lot of it has to do with catching up from some of the things I lost… some of my short term memory was hit. Mostly in things that I was in the process of learning (and that can be a long process, like… really long).Continue Reading

Finally IVIG Infusions

Finally IVIG Infusions

FINALLY! My IVIG infusions were renewed for another 6 months. We got in as soon as we could and today is day 2. After it builds up in my system again over the next few months, we’ll be able to see if and how it will continue to help me. Until then, I’m sitting inContinue Reading

My New Favorite Thing

My New Favorite Thing

You know what I’ve been loving to do lately…. What my “thing” is? What I’ll spontaneously announce from somewhere in my house, on the iPad or not, or even out in the car, a store, wherever… “Bounce on the trampoline!?!??!” I say with a hopeful smile. Even better… is after dinner when I ask ifContinue Reading

Kitty Love – We Got a Cat

Kitty Love – We Got a Cat

Sometimes I’m afraid of dogs. Mostly big dogs and dogs I just don’t know. It’s not their teeth or their bark… it’s how much they jump around. They’re unpredictable. They could very easily brush me and plaster me face first on the ground. Through the years, I’ve decided that small dogs and cats are okay.Continue Reading

Epilepsy Is Not Invisible

Epilepsy Is Not Invisible

This is me.  This was take a few short months before my first seizure on December 1, 2006.  After my first seizure, my sister was born within days and I turned four within a month.  Life changed. I was slowly trying to prepare Mom and Dad for what was to come.  I could feel itContinue Reading


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