You know those days when you have really good stuff going on? This was one of those days…. even despite the changes the therapists made! So, it goes something like this:
I was ready! Ready to WORK! I do want to go home after all! I was positive, happy and motivated! I had my AFO (leg brace) on. I was dressed. I sat in the wheelchair at my door waiting for my speech therapist to come gather me to do some… speech. Nadda.
Time passed. I regroup and find myself in the same place waiting for OT/PT. Nadda.
This is frustrating! I’m exhausted. Dad puts me back in bed to rest, only to find out that my therapists (not my usual ones either) have rearranged my schedule for the day without letting anyone know! So, I could have been napping when I was up and, later we would discover, I ended up missing any time to nap and was a mess.
As I nodded off, the new speech person came to get me, Dad turned her away! Then she came again and Dad and I went. I. Had. A. Great. Session!
Then, OT/PT came, and again… A. Great. Session! I climbed three flights of stairs to get ready for stairs at home. I did all the games they wanted to play. I was happy, active, and I walked a lot. It was a great session too! After a little rest, lunch and a visit from O and B, opened some surprise gifts (THANK YOU), it was time for therapy again.
This time it didn’t go so well….
I almost fell asleep sitting up in speech. Then I got mad because no one was hearing me that I was too tired, despite (I don’t know what that means but I’ve heard Mom use that word) the black circles people said were around my eyes. Really, I’m not sure how they got there. No one put any markers on my face. Weird.
So… I threw some stuff…. Um. Did you know that when you throw stuff you have to pick it up? I was hoping I wouldn’t have to, but I ended up picking it all up and then decided to have fun with a game. It ended up being pretty good.
Then OT/PT came and I was a mess again. I had to walk to the Jim (but there was no one named “Jim” there, only a bunch of toys and mats). I got there and my head hurt SO bad. The lights stung my eyes. My head throbbed. The one side of my head was really big, like I had a ball on my head. I cried and held my head. The therapists let me lay down for a little bit while the nurse got me some cherry flavored stuff they call medicine to help me.
In the end though, I rallied. I stood up and showed Mom how I played this game called Ice Breaker at our morning session. It was fun. The nice therapists didn’t make me use my right hand though because I was hurting and really just wanted to go back to bed. When I was done showing Mom, she took me to bed and I feel asleep for a long time. (Especially because someone surprised me and send me this handmade weighted blanket…THANK YOU!!!!)
I kinda remember visitors, but sometimes everything feels like a dream.
I had a great night and got to relax. I even had a new nurse (again) at night. She’s really pretty but doesn’t have all the colors that Mom puts on her face. I was feeling so good, I thought I’d do what Dad taught me and use a really good sentence to make her smile. Do you want to know my sentence? Okay, but remember you can only say it to someone you think is really, really pretty. This is what happened…
Ms. B checked my arms and stuff. She was walking out the door when I was ready for bed. The lights were out and she turned and said, “Good Night Jackson.”
I smiled, rolled over, and said with my biggest smile, “Good Night Cheeseburger!”