Some time has gone by since I told you how I was doing. In so many ways I’ve been doing a lot, and in many ways, not a lot.
I’ve had a few visitors and have gone out a little bit, but, honestly, going out is just hard. I don’t much have the energy. Sometimes I don’t feel well. The wind hurts my skin, even the wind from the windows being open in the car, or the slightest evening breeze. I don’t like light, though I tend to try to allow as much in as possible before it just hurts me so much that I can’t stand any more.
These days, I stay around the house unless Mom or Dad force me out. Today they bribed me with an Icee. Usually the most I’m willing to do is sit on the front porch with an iPad. Even my favorite things I’m not doing. My favorites include chasing after trains along a main train route, swimming and going on the trampoline.
I don’t go on the trampoline because… well, because I’m not supposed to – I’m not allowed that much jarring. Though one time I wanted to sit on the trampoline and even that was too much so I don’t even ask about it anymore.
When we went to the doc last week, she said I could go swimming! And I loved it… I was SO excited. We’ve only swimming once, and I only went in for a short time before my body had a hard time keeping me warm. Then, when I got out, I couldn’t even get warm in the 97 degree sun.
I refused to go today.
But Paper Jackson is making his way around….