So much has changed for me since my surgery. A lot of it has to do with catching up from some of the things I lost… some of my short term memory was hit. Mostly in things that I was in the process of learning (and that can be a long process, like… really long).
But I’m officially now only using the IVIG for potential seizure control (since no one can say if the right side of my brain is healthy, no one knows when / if I may start having seizures again). No more Clobazam (or Onfi now that it’s in the US). Just the positive vibes the IVIG gives me, and ME! And I’m starting to come out of my shell.
I talk more. (I also ramble more). I still have perseverations, but I also can let my sense of humor gleam. I can interact more with my friends and tend to play with a less aggression than I used to… I didn’t like that part of me that I couldn’t control. I’m loving life and finding fun in every day.
Here’s a video me trying to tell you how old I was pre-surgery.
And here’s one this morning…. MY BIRTHDAY MORNING….